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My son is fifteen years old. He was born
with Down Syndrome. In the last fifteen years I have amassed enough
stories to fill volumes. However, right now I want to just stick
to the topic of expectations.
When Joshua was born the doctors advised
us to not "waste our time, energy or money." They claimed
that our son would never amount to anything. They told us he would
never walk, talk or learn to use the toilet. Lucky for us and
for our son we were not about to accept that prognosis. However,
we weren't really sure what to expect.
They
claimed that our son would never amount to anything.
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We expected him to develop at his own pace,
with a lot of help and stimulation, but to develop nonetheless.
We decided that as long as we saw progress we could never give
up.
There is never a dull moment when raising
a child who is "different." The lows can be quite low,
but the highs are really high. Our expectations must be realistic
but what is realistic can differ greatly from one person to the
next and even for the same individual at different times in his
life. Very early on we knew in our hearts that we had to have
high expectations, but how high? We could not set goals for him
(or for any other child, for that matter) that he could not ever
possibly reach. However, if we did not have high hopes, there
were slim chances that he would work to his potential.
I would like to illustrate this point with
a story.
When Joshua was four-and-a-half-years old
he was mainstreamed into a "regular" preschool in a
synagogue. His younger sister, C.J., was three and attended the
same preschool in a younger class. The school ran an art contest
and all the children submitted pictures. The pictures were hung
on the wall and the president of the synagogue, who was not personally
familiar with the children, was the judge.
On the day of the contest I made an effort
to see C.J.'s picture as it was being hung, but Joshua's class
pictures were not yet up and I did not think twice about seeing
his picture before leaving the building. You see, I had no expectation
that Joshua would win; it was enough for me to know that he was
able to draw a picture and have it displayed with those of the
other children.
Joshua winning? I am ashamed to admit that
I did not even consider the possibility.
Well, when I returned to pick up the kids
you can imagine my surprise when I discovered that Joshua was
the winner from his class! He was so proud and excited, he told
everyone, "I won the contest! I made it! I made a tree!"
C.J. kept insisting that she had won too
and it was certainly a special feeling to know that Joshua had
accomplished something that his sister had not.
After that I decided to keep my expectations
high. It seems that most people work to whatever expectations
are set for them.
Why should
Joshua be any different?
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